Amy L. McGuire, Ph.D.
Affiliations: | 2004 | University of Texas Medical Branch, Galveston, TX |
Area:
History of Science, LawGoogle:
"Amy McGuire"Parents
Sign in to add mentor| William J. Winslade | grad student | 2004 | UTMB | |
| (Respect for research subjects: Reality or rhetoric?) | ||||
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Publications
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| Gutierrez AM, Robinson JO, Raesz-Martinez R, et al. (2023) Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research. Journal of Adolescent and Young Adult Oncology |
| Largent EA, Clapp J, Blumenthal-Barby JS, et al. (2022) Deciding with Others: Interdependent Decision-Making. The Hastings Center Report. 52: 23-32 |
| Smith HS, Sanchez CE, Maag R, et al. (2022) Patient and Clinician Perceptions of Precision Cardiology Care: Findings From the HeartCare Study. Circulation. Genomic and Precision Medicine. e003605 |
| Smith HS, Brothers KB, Knight SJ, et al. (2021) Conceptualization of utility in translational clinical genomics research. American Journal of Human Genetics. 108: 2027-2036 |
| McGuire AL, Aulisio MP, Davis FD, et al. (2020) Ethical Challenges Arising in the COVID-19 Pandemic: An Overview from the Association of Bioethics Program Directors (ABPD) Task Force. The American Journal of Bioethics : Ajob. 1-13 |
| Wolf SM, Ossorio PN, Berry SA, et al. (2020) Integrating Rules for Genomic Research, Clinical Care, Public Health Screening and DTC Testing: Creating Translational Law for Translational Genomics. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 48: 69-86 |
| Botkin JR, Appelbaum PS, Bakken S, et al. (2018) Standardizing return of participant results. Science (New York, N.Y.). 362: 759-760 |
| Roberts JS, Robinson JO, Diamond PM, et al. (2018) Patient understanding of, satisfaction with, and perceived utility of whole-genome sequencing: findings from the MedSeq Project. Genetics in Medicine : Official Journal of the American College of Medical Genetics |
| Deverka PA, Majumder MA, Villanueva AG, et al. (2017) Creating a data resource: what will it take to build a medical information commons? Genome Medicine. 9: 84 |
| Wolf SM, Amendola LM, Berg JS, et al. (2017) Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium. Genetics in Medicine : Official Journal of the American College of Medical Genetics |