☰

Allison Werner-Lin, Ph.D. - Publications

Affiliations: 
2005 University of Chicago, Chicago, IL 
Area:
Social Work
Tree Info Similar researchers PubMed Report error

26 high-probability publications. We are testing a new system for linking publications to authors. You can help! If you notice any inaccuracies, please sign in and mark papers as correct or incorrect matches. If you identify any major omissions or other inaccuracies in the publication list, please let us know.

Year Citation  Score
2022 Werner-Lin A, Forbes Shepherd R, Young JL, Wilsnack C, Merrill SL, Greene MH, Khincha PP. Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body. Social Science & Medicine (1982). 301: 114905. PMID 35367908 DOI: 10.1016/j.socscimed.2022.114905  0.316
2021 Wilsnack C, Young JL, Merrill SL, Groner V, Loud JT, Bremer RC, Greene MH, Khincha PP, Werner-Lin A. Family Identity and Roles in the Context of Li-Fraumeni Syndrome: "No One's Like Us Mutants". Health & Social Work. PMID 34618014 DOI: 10.1093/hsw/hlab032  0.367
2021 Forbes Shepherd R, Keogh LA, Werner-Lin A, Delatycki MB, Forrest LE. Benefits and burdens of risk management for young people with inherited cancer: A focus on Li-Fraumeni syndrome. Australian Journal of General Practice. 50: 538-544. PMID 34333565 DOI: 10.31128/AJGP-04-21-5954  0.316
2020 Forbes Shepherd R, Werner-Lin A, Keogh LA, Delatycki MB, Forrest LE. "I need to know if I'm going to die young": Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome. Journal of Psychosocial Oncology. 1-20. PMID 32449501 DOI: 10.1080/07347332.2020.1768199  0.398
2020 Werner-Lin A, Young JL, Wilsnack C, Merrill SL, Groner V, Greene MH, Khincha PP. Waiting and "weighted down": the challenge of anticipatory loss for individuals and families with Li-Fraumeni Syndrome. Familial Cancer. PMID 32222840 DOI: 10.1007/S10689-020-00173-6  0.423
2019 Forbes Shepherd R, Keogh LA, Werner-Lin A, Delatycki MB, Forrest LE. Health professionals' practice for young people with, or at risk of, Li-Fraumeni syndrome: An Australasian survey. Journal of Genetic Counseling. PMID 31872506 DOI: 10.1002/jgc4.1199  0.369
2019 Pantaleao A, Young JL, Epstein NB, Carlson M, Bremer RC, Khincha PP, Peters JA, Greene MH, Roy K, Achatz MI, Savage SA, Werner-Lin A. Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations. Family Process. PMID 31647118 DOI: 10.1111/famp.12497  0.365
2018 Young JL, Pantaleao A, Zaspel L, Bayer J, Peters JA, Khincha PP, Bremer RC, Loud JT, Greene MH, Achatz MI, Savage SA, Werner-Lin A. Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence. Journal of Psychosocial Oncology. 1-16. PMID 30591002 DOI: 10.1080/07347332.2018.1543376  0.325
2018 Ersig AL, Werner-Lin A, Hoskins L, Young J, Loud JT, Peters J, Greene MH. Legacies and Relationships: Diverse Social Networks and BRCA1/2 Risk Management Decisions and Actions. Journal of Family Nursing. 1074840718815844. PMID 30537877 DOI: 10.1177/1074840718815844  0.414
2018 Werner-Lin A, Merrill SL, Brandt AC, Barnett RE, Matloff ET. Correction to: Talking with Children about Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents. Journal of Genetic Counseling. PMID 30033482 DOI: 10.1007/S10897-018-0282-0  0.3
2018 Forbes Shepherd R, Lewis A, Keogh LA, Werner-Lin A, Delatycki MB, Forrest LE. A Systematic Review of How Young People Live with Inherited Disease: What Can We Learn for Li-Fraumeni Syndrome? Journal of Adolescent and Young Adult Oncology. PMID 30004834 DOI: 10.1089/Jayao.2018.0028  0.374
2018 Werner-Lin A, Ersig AL, Mueller R, Young JL, Hoskins LM, Desai R, Greene MH. Catalysts towards cancer risk management action: A longitudinal study of reproductive-aged women with BRCA1/2 mutations. Journal of Psychosocial Oncology. 1-16. PMID 29863445 DOI: 10.1080/07347332.2018.1469565  0.414
2018 Werner-Lin A, Zaspel L, Carlson M, Mueller R, Walser SA, Desai R, Bernhardt BA. Gratitude, protective buffering, and cognitive dissonance: How families respond to pediatric whole exome sequencing in the absence of actionable results. American Journal of Medical Genetics. Part A. 176: 578-588. PMID 29446570 DOI: 10.1002/ajmg.a.38613  0.322
2018 Werner-Lin A, Merrill SL, Brandt AC. Talking with Children About Adult-Onset Hereditary Cancer Risk: A Developmental Approach for Parents. Journal of Genetic Counseling. PMID 29383546 DOI: 10.1007/S10897-017-0191-7  0.41
2017 Walser SA, Werner-Lin A, Mueller R, Miller VA, Biswas S, Bernhardt BA. How do providers discuss the results of pediatric exome sequencing with families? Personalized Medicine. 14: 409-422. PMID 28966657 DOI: 10.2217/Pme-2017-0015  0.303
2017 Young JL, Werner-Lin A, Mueller R, Hoskins L, Epstein N, Greene MH. Longitudinal cancer risk management trajectories of BRCA1/2 mutation-positive reproductive-age women. Journal of Psychosocial Oncology. 1-16. PMID 28332940 DOI: 10.1080/07347332.2017.1292574  0.421
2017 Miller VA, Werner-Lin A, Walser SA, Biswas S, Bernhardt BA. An Observational Study of Children's Involvement in Informed Consent for Exome Sequencing Research. Journal of Empirical Research On Human Research Ethics : Jerhre. 12: 6-13. PMID 28220724 DOI: 10.1177/1556264616674096  0.305
2016 Werner-Lin A, McCoyd JLM, Doyle MH, Gehlert SJ. Leadership, Literacy, and Translational Expertise in Genomics: Challenges and Opportunities for Social Work. Health & Social Work. 41: e52-e59. PMID 29206948 DOI: 10.1093/Hsw/Hlw022  0.439
2016 Doyle M, Werner-Lin A. Family Strategies for Living with Rare Disease: The Experience of Cystinosis Journal of the Society For Social Work and Research. 7: 547-567. DOI: 10.1086/688048  0.378
2015 Werner-Lin A, Ratner R, Hoskins LM, Lieber C. A survey of genetic counselors about the needs of 18-25 year olds from families with hereditary breast and ovarian cancer syndrome. Journal of Genetic Counseling. 24: 78-87. PMID 25011978 DOI: 10.1007/S10897-014-9739-Y  0.464
2014 Werner-Lin A, Hoskins L, Lieber C, Ratner R. 493PDA SURVEY OF GENETIC COUNSELLORS ABOUT THE NEEDS OF 18-25 YEAR OLDS FROM FAMILIES WITH HEREDITARY BREAST AND OVARIAN CANCER SYNDROME. Annals of Oncology : Official Journal of the European Society For Medical Oncology. 25: iv165. PMID 28174851 DOI: 10.1093/Annonc/Mdu332.3  0.457
2014 Hoskins LM, Werner-Lin A, Greene MH. In Their own words: Treating very young BRCA1/2 mutation-positive women with care and caution Plos One. 9. PMID 24586286 DOI: 10.1371/journal.pone.0087696  0.313
2013 Hoskins LM, Werner-Lin A. A multi-case report of the pathways to and through genetic testing and cancer risk management for BRCA mutation-positive women aged 18-25 Journal of Genetic Counseling. 22: 27-38. PMID 22864682 DOI: 10.1007/s10897-012-9521-y  0.332
2012 Werner-Lin A, Hoskins LM, Doyle MH, Greene MH. 'Cancer doesn't have an age': genetic testing and cancer risk management in BRCA1/2 mutation-positive women aged 18-24. Health (London, England : 1997). 16: 636-54. PMID 22547552 DOI: 10.1177/1363459312442420  0.367
2008 Werner-Lin A. Beating the biological clock: the compressed family life cycle of young women with BRCA gene alterations. Social Work in Health Care. 47: 416-37. PMID 19042494 DOI: 10.1080/00981380802173509  0.338
2008 Werner-Lin A. Formal and informal support needs of young women with BRCA mutations. Journal of Psychosocial Oncology. 26: 111-33. PMID 19042275  0.3
Show low-probability matches.