| Year |
Citation |
Score |
| 2021 |
Smith HS, Brothers KB, Knight SJ, Ackerman SL, Rini C, Veenstra DL, McGuire AL, Wilfond BS, Malek J. Conceptualization of utility in translational clinical genomics research. American Journal of Human Genetics. 108: 2027-2036. PMID 34687653 DOI: 10.1016/j.ajhg.2021.08.013 |
0.312 |
|
| 2020 |
Wilfond BS, Duenas DM, Johnson LM. Conflicts of Interest and Recommendations for Clinical Treatments That Benefit Researchers. The American Journal of Bioethics : Ajob. 20: 90-91. PMID 32945746 DOI: 10.1080/15265161.2020.1806380 |
0.369 |
|
| 2020 |
Johnson LM, Duenas DM, Wilfond BS. Click Here to Complete This Survey: Online Research, Adolescents, and Parental Consent. The American Journal of Bioethics : Ajob. 20: 82-83. PMID 32945745 DOI: 10.1080/15265161.2020.1806381 |
0.306 |
|
| 2020 |
MacDuffie KE, Kleinhans NM, Stout K, Wilfond BS. Protection Versus Progress: The Challenge of Research on Cannabis Use During Pregnancy. Pediatrics. 146: S93-S98. PMID 32737240 DOI: 10.1542/Peds.2020-0818R |
0.329 |
|
| 2020 |
Wilfond BS, Porter KM. Reimagining the Goal of Informed Consent to Help Patients Make Decisions About Research. The American Journal of Bioethics : Ajob. 20: 22-23. PMID 32677869 DOI: 10.1080/15265161.2020.1745952 |
0.367 |
|
| 2020 |
Duenas DM, Wilfond BS, Johnson LM. Clearing Muddy Waters: The Need to Reconceptualize Minor Increase over Minimal Risk in Pediatric Rare Disease Research. The American Journal of Bioethics : Ajob. 20: 8-10. PMID 32208084 DOI: 10.1080/15265161.2020.1735868 |
0.311 |
|
| 2020 |
Kraft SA, McMullen C, Lindberg NM, Bui D, Shipman K, Anderson K, Joseph G, Duenas DM, Porter KM, Kauffman TL, Koomas A, Ransom CL, Jackson P, Goddard KAB, Wilfond BS, et al. Integrating stakeholder feedback in translational genomics research: an ethnographic analysis of a study protocol's evolution. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 32089547 DOI: 10.1038/S41436-020-0763-Z |
0.317 |
|
| 2020 |
Wilfond BS. Pediatric Drug Labeling and Imperfect Information. The Hastings Center Report. 50: 3. PMID 32068277 DOI: 10.1002/Hast.1074 |
0.306 |
|
| 2019 |
Wightman A, Wilfond BS, Diekema D, Paquette E, Shah S. Relationships help make life worth living. Journal of Medical Ethics. PMID 31732679 DOI: 10.1136/Medethics-2019-105809 |
0.338 |
|
| 2019 |
Wilfond BS, Porter KM. Justifying Investigator/Clinician Consent When The Physician-Patient Relationship Can Support Better Research Decision-Making. The American Journal of Bioethics : Ajob. 19: 26-28. PMID 31544673 DOI: 10.1080/15265161.2019.1574496 |
0.363 |
|
| 2019 |
Childerhose JE, Finnila CR, Yu JH, Koenig BA, McEwen J, Berg SL, Wilfond BS, Appelbaum PS, Brothers KB. Participant Engagement in Translational Genomics Research: Respect for Persons-and Then Some. Ethics & Human Research. 41: 2-15. PMID 31541538 DOI: 10.1002/eahr.500029 |
0.314 |
|
| 2019 |
Yu JH, Appelbaum PS, Brothers KB, Joffe S, Kauffman TL, Koenig BA, Prince AE, Scollon S, Wolf SM, Bernhardt BA, Wilfond BS. Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium. Personalized Medicine. PMID 31313633 DOI: 10.2217/Pme-2018-0076 |
0.375 |
|
| 2019 |
Wightman A, Kett J, Campelia G, Wilfond BS. The Relational Potential Standard: Rethinking the Ethical Justification for Life-Sustaining Treatment for Children with Profound Cognitive Disabilities. The Hastings Center Report. 49: 18-25. PMID 31269258 DOI: 10.1002/Hast.1003 |
0.331 |
|
| 2019 |
Johnson LM, Zabrowski J, Wilfond BS. Should Research Participants Be Notified About Results of Currently Unknown but Potential Significance? The American Journal of Bioethics : Ajob. 19: 73-74. PMID 30994427 DOI: 10.1080/15265161.2019.1572831 |
0.345 |
|
| 2019 |
Wilfond BS, Zabrowski J, Johnson LM. The Limitations of "Boilerplate" Language in Informed Consent: Single IRB Review of Multisite Genetic Research in Military Personnel. The American Journal of Bioethics : Ajob. 19: 81-82. PMID 30994423 DOI: 10.1080/15265161.2019.1572832 |
0.329 |
|
| 2019 |
Garrett JR, Lantos JD, Biesecker LG, Childerhose JE, Chung WK, Holm IA, Koenig BA, McEwen JE, Wilfond BS, Brothers K. Rethinking the "open future" argument against predictive genetic testing of children. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 30894702 DOI: 10.1038/S41436-019-0483-4 |
0.345 |
|
| 2019 |
Wong CS, Kogon AJ, Warady BA, Furth SL, Lantos JD, Wilfond BS. Ethical and Policy Considerations for Genomic Testing in Pediatric Research: The Path Toward Disclosing Individual Research Results. American Journal of Kidney Diseases : the Official Journal of the National Kidney Foundation. PMID 30879919 DOI: 10.1053/J.Ajkd.2019.01.020 |
0.374 |
|
| 2019 |
Weiss EM, Clark JD, Heike CL, Rosenberg AR, Shah SK, Wilfond BS, Opel DJ. Gaps in the Implementation of Shared Decision-making: Illustrative Cases. Pediatrics. 143. PMID 30824603 DOI: 10.1542/Peds.2018-3055 |
0.366 |
|
| 2018 |
Rope AF, Kauffman TL, Himes P, Amendola LM, Punj S, Akkari Y, Potter A, Davis JV, Schneider JL, Reiss JA, Gilmore MJ, McMullen CK, Nickerson DA, Richards CS, Jarvik GP, ... Wilfond BS, et al. A case for expanding carrier testing to include actionable X-linked disorders. Clinical Case Reports. 6: 2092-2095. PMID 30455898 DOI: 10.1002/Ccr3.1806 |
0.307 |
|
| 2018 |
Wilfond BS, Porter KM, Creevy KE, Kaeberlein M, Promislow D. Research to Promote Longevity and Health Span in Companion Dogs: A Pediatric Perspective. The American Journal of Bioethics : Ajob. 18: 64-65. PMID 30339074 DOI: 10.1080/15265161.2018.1513591 |
0.323 |
|
| 2018 |
Taylor HA, Morales C, Johnson LM, Wilfond BS. A Randomized Trial of Rapamycin to Increase Longevity and Healthspan in Companion Animals: Navigating the Boundary Between Protections for Animal Research and Human Subjects Research. The American Journal of Bioethics : Ajob. 18: 58-59. PMID 30339066 DOI: 10.1080/15265161.2018.1522166 |
0.318 |
|
| 2018 |
Kraft SA, Duenas D, Wilfond BS, Goddard KAB. The evolving landscape of expanded carrier screening: challenges and opportunities. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 30245516 DOI: 10.1038/S41436-018-0273-4 |
0.318 |
|
| 2018 |
Amendola LM, Berg JS, Horowitz CR, Angelo F, Bensen JT, Biesecker BB, Biesecker LG, Cooper GM, East K, Filipski K, Fullerton SM, Gelb BD, Goddard KAB, Hailu B, Hart R, ... ... Wilfond BS, et al. The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations. American Journal of Human Genetics. 103: 319-327. PMID 30193136 DOI: 10.1016/J.Ajhg.2018.08.007 |
0.352 |
|
| 2018 |
Porter KM, Kauffman TL, Koenig BA, Lewis KL, Rehm HL, Richards CS, Strande NT, Tabor HK, Wolf SM, Yang Y, Amendola LM, Azzariti DR, Berg JS, Bergstrom K, Biesecker LG, ... ... Wilfond BS, et al. Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience. Molecular Genetics & Genomic Medicine. PMID 30133189 DOI: 10.1002/Mgg3.453 |
0.396 |
|
| 2018 |
Goldenberg AJ, Lloyd-Puryear M, Brosco JP, Therrell B, Bush L, Berry S, Brower A, Bonhomme N, Bowdish B, Chrysler D, Clarke A, Crawford T, Goldman E, Hiner S, Howell RR, ... ... Wilfond BS, et al. Including ELSI research questions in newborn screening pilot studies. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 30100612 DOI: 10.1038/S41436-018-0101-X |
0.366 |
|
| 2018 |
Clarke EV, Schneider JL, Lynch F, Kauffman TL, Leo MC, Rosales AG, Dickerson JF, Shuster E, Wilfond BS, Goddard KAB. Assessment of willingness to pay for expanded carrier screening among women and couples undergoing preconception carrier screening. Plos One. 13: e0200139. PMID 30020962 DOI: 10.1371/Journal.Pone.0200139 |
0.306 |
|
| 2018 |
Wolf SM, Scholtes E, Koenig BA, Petersen GM, Berry SA, Beskow LM, Daly MB, Fernandez CV, Green RC, LeRoy BS, Lindor NM, O'Rourke PP, Breitkopf CR, Rothstein MA, Van Ness B, ... Wilfond BS, et al. Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 46: 87-109. PMID 30008546 DOI: 10.1177/1073110518766024 |
0.367 |
|
| 2018 |
Brothers KB, Wilfond BS. Research Consent at the Age of Majority: Preferable but not Obligatory. Pediatrics. 142. PMID 29980585 DOI: 10.1542/Peds.2017-3038 |
0.39 |
|
| 2018 |
Lee SS, Cho MK, Kraft SA, Varsava N, Gillespie K, Ormond KE, Wilfond BS, Magnus D. "I don't want to be Henrietta Lacks": diverse patient perspectives on donating biospecimens for precision medicine research. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 29887604 DOI: 10.1038/S41436-018-0032-6 |
0.376 |
|
| 2018 |
Salehi P, Divall SA, Crouch JM, Hopkinson RA, Kroon L, Lawrence J, Wilfond BS, Inwards-Breland DJ. Review of Current Care Models for Transgender Youth and Application to the Development of a Multidisciplinary Clinic - The Seattle Children's Hospital Experience. Pediatric Endocrinology Reviews : Per. 15: 280-290. PMID 29806748 DOI: 10.17458/Per.Vol15.2018.Sdc.Transgenderyouth |
0.316 |
|
| 2018 |
Shah AR, Wilfond BS, Silvia A, Hancuch K, Woodrum D, Heagerty P, Ohls RK, Courtney SE, Frantz ID, Gogcu S, Bishop CE, Ahmad KA, Kathen C, Juul S. Informed consent for a neonatal clinical trial: parental experiences and perspectives. Journal of Perinatology : Official Journal of the California Perinatal Association. PMID 29795451 DOI: 10.1038/S41372-018-0119-6 |
0.366 |
|
| 2018 |
Punj S, Akkari Y, Huang J, Yang F, Creason A, Pak C, Potter A, Dorschner MO, Nickerson DA, Robertson PD, Jarvik GP, Amendola LM, Schleit J, Simpson DK, Rope AF, ... ... Wilfond B, et al. Preconception Carrier Screening by Genome Sequencing: Results from the Clinical Laboratory. American Journal of Human Genetics. PMID 29754767 DOI: 10.1016/J.Ajhg.2018.04.004 |
0.323 |
|
| 2018 |
Wilfond BS, Kauffman TL, Jarvik GP, Reiss JA, Richards CS, McMullen C, Gilmore M, Himes P, Kraft SA, Porter KM, Schneider JL, Punj S, Leo MC, Dickerson JF, Lynch FL, et al. Lessons Learned From A Study Of Genomics-Based Carrier Screening For Reproductive Decision Making. Health Affairs (Project Hope). 37: 809-816. PMID 29733724 DOI: 10.1377/Hlthaff.2017.1578 |
0.367 |
|
| 2018 |
Kraft SA, Cho MK, Gillespie K, Halley M, Varsava N, Ormond KE, Luft HS, Wilfond BS, Soo-Jin Lee S. Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research. The American Journal of Bioethics : Ajob. 18: 3-20. PMID 29621457 DOI: 10.1080/15265161.2018.1431322 |
0.375 |
|
| 2018 |
Bush LW, Bartoshesky LE, David KL, Wilfond B, Williams JL, Holm IA. Pediatric clinical exome/genome sequencing and the engagement process: encouraging active conversation with the older child and adolescent: points to consider-a statement of the American College of Medical Genetics and Genomics (ACMG). Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 29565417 DOI: 10.1038/Gim.2018.36 |
0.355 |
|
| 2018 |
Peay HL, Biesecker BB, Wilfond BS, Jarecki J, Umstead KL, Escolar DM, Tibben A. Barriers and facilitators to clinical trial participation among parents of children with pediatric neuromuscular disorders. Clinical Trials (London, England). 15: 139-148. PMID 29475375 DOI: 10.1177/1740774517751118 |
0.33 |
|
| 2018 |
Lynch FL, Himes P, Gilmore MJ, Morris EM, Schneider JL, Kauffman TL, Shuster E, Reiss JA, Dickerson JF, Leo MC, Davis JV, McMullen CK, Wilfond BS, Goddard KAB. Time Costs for Genetic Counseling in Preconception Carrier Screening with Genome Sequencing. Journal of Genetic Counseling. PMID 29423569 DOI: 10.1007/S10897-017-0205-5 |
0.366 |
|
| 2018 |
Porter KM, Danis M, Taylor HA, Cho MK, Wilfond BS. Defining the Scope and Improving the Quality of Clinical Research Ethics Consultation: Response to Open Peer Commentaries About the National Collaborative. The American Journal of Bioethics : Ajob. 18: W13-W15. PMID 29393779 DOI: 10.1080/15265161.2017.1413438 |
0.403 |
|
| 2018 |
Porter KM, Danis M, Taylor HA, Cho MK, Wilfond BS. The Emergence of Clinical Research Ethics Consultation: Insights From a National Collaborative. The American Journal of Bioethics : Ajob. 18: 39-45. PMID 29313771 DOI: 10.1080/15265161.2017.1401156 |
0.412 |
|
| 2018 |
Kraft SA, Schneider JL, Leo MC, Kauffman TL, Davis JV, Porter KM, McMullen CK, Wilfond BS, Goddard KAB. Patient actions and reactions after receiving negative results from expanded carrier screening. Clinical Genetics. PMID 29293279 DOI: 10.1111/Cge.13206 |
0.302 |
|
| 2017 |
Kauffman TL, Irving SA, Leo MC, Gilmore MJ, Himes P, McMullen CK, Morris E, Schneider J, Wilfond BS, Goddard KAB. The NextGen Study: patient motivation for participation in genome sequencing for carrier status. Molecular Genetics & Genomic Medicine. 5: 508-515. PMID 28944234 DOI: 10.1002/Mgg3.306 |
0.338 |
|
| 2017 |
Wolf SM, Amendola LM, Berg JS, Chung WK, Clayton EW, Green RC, Harris-Wai J, Henderson GE, Jarvik GP, Koenig BA, Lehmann LS, McGuire AL, O'Rourke P, Somkin C, Wilfond BS, et al. Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 28858330 DOI: 10.1038/Gim.2017.137 |
0.404 |
|
| 2017 |
Carpenter D, Gonzalez D, Retsch-Bogart G, Sleath B, Wilfond B. Methodological and Ethical Issues in Pediatric Medication Safety Research. Pediatrics. PMID 28778857 DOI: 10.1542/Peds.2017-0195 |
0.385 |
|
| 2017 |
Kraft SA, Porter KM, Shah SK, Wilfond BS. Comprehension and Choice Under the Revised Common Rule: Improving Informed Consent by Offering Reasons Why Some Enroll in Research and Others Do Not. The American Journal of Bioethics : Ajob. 17: 53-55. PMID 28661747 DOI: 10.1080/15265161.2017.1328535 |
0.374 |
|
| 2017 |
Cole AM, Baldwin LM, Keppel GA, Kuwana E, Mollis BL, Wilfond BS. Conflicts of Interest and Distribution of Resources to Community Partners: An Organizational Ethics Dilemma. Progress in Community Health Partnerships : Research, Education, and Action. 11: 99-106. PMID 28603156 DOI: 10.1353/Cpr.2017.0013 |
0.343 |
|
| 2017 |
Taylor HA, Morales C, Wilfond BS. Genotype-Driven Recruitment in Population-Based Biomedical Research. The American Journal of Bioethics : Ajob. 17: 58-59. PMID 28328376 DOI: 10.1080/15265161.2017.1284935 |
0.311 |
|
| 2017 |
Gilmore MJ, Schneider J, Davis JV, Kauffman TL, Leo MC, Bergen K, Reiss JA, Himes P, Morris E, Young C, McMullen C, Wilfond BS, Goddard KA. Reasons for Declining Preconception Expanded Carrier Screening Using Genome Sequencing. Journal of Genetic Counseling. PMID 28315134 DOI: 10.1007/S10897-017-0074-Y |
0.351 |
|
| 2017 |
Kohler J, Turbitt E, Lewis KL, Wilfond BS, Jamal L, Peay HL, Biesecker LG, Biesecker BB. Defining personal utility in genomics: A Delphi study. Clinical Genetics. PMID 28218387 DOI: 10.1111/Cge.12998 |
0.356 |
|
| 2017 |
Himes P, Kauffman TL, Muessig KR, Amendola LM, Berg JS, Dorschner MO, Gilmore M, Nickerson DA, Reiss JA, Richards CS, Rope AF, Simpson DK, Wilfond BS, Jarvik GP, Goddard KA. Genome sequencing and carrier testing: decisions on categorization and whether to disclose results of carrier testing. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 28079899 DOI: 10.1038/Gim.2016.198 |
0.314 |
|
| 2016 |
Kauffman TL, Wilfond BS, Jarvik GP, Leo MC, Lynch FL, Reiss JA, Sue Richards C, McMullen C, Nickerson D, Dorschner MO, Goddard KA. Design of a randomized controlled trial for genomic carrier screening in healthy patients seeking preconception genetic testing. Contemporary Clinical Trials. PMID 27940182 DOI: 10.1016/J.Cct.2016.12.007 |
0.358 |
|
| 2016 |
Lee SS, Kelley M, Cho MK, Kraft SA, James C, Constantine M, Meyer AN, Diekema D, Capron AM, Wilfond BS, Magnus D. Adrift in the Gray Zone: IRB Perspectives on Research in the Learning Health System. Ajob Empirical Bioethics. 7: 125-134. PMID 27917391 DOI: 10.1080/23294515.2016.1155674 |
0.41 |
|
| 2016 |
Mathews DJ, Hester DM, Kahn J, McGuire A, McKinney R, Meador K, Philpott-Jones S, Youngner S, Wilfond BS. A Conceptual Model for the Translation of Bioethics Research and Scholarship. The Hastings Center Report. 46: 34-9. PMID 27649827 DOI: 10.1002/Hast.615 |
0.364 |
|
| 2016 |
Kraft SA, Constantine M, Magnus D, Porter KM, Lee SS, Green M, Kass NE, Wilfond BS, Cho MK. A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent. Clinical Trials (London, England). PMID 27625314 DOI: 10.1177/1740774516669352 |
0.405 |
|
| 2016 |
Tan N, Amendola LM, O'Daniel JM, Burt A, Horike-Pyne MJ, Boshe L, Henderson GE, Rini C, Roche MI, Hisama FM, Burke W, Wilfond B, Jarvik GP. Is "incidental finding" the best term?: a study of patients' preferences. Genetics in Medicine : Official Journal of the American College of Medical Genetics. PMID 27490114 DOI: 10.1038/Gim.2016.96 |
0.324 |
|
| 2016 |
Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, ... ... Wilfond BS, et al. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. American Journal of Human Genetics. 99: 246. PMID 27392080 DOI: 10.1016/J.Ajhg.2016.06.002 |
0.344 |
|
| 2016 |
Kraft SA, Cho MK, Constantine M, Lee SS, Kelley M, Korngiebel D, James C, Kuwana E, Meyer A, Porter K, Diekema D, Capron AM, Alicic R, Wilfond BS, Magnus D. A comparison of institutional review board professionals' and patients' views on consent for research on medical practices. Clinical Trials (London, England). PMID 27257125 DOI: 10.1177/1740774516648907 |
0.392 |
|
| 2016 |
Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, ... ... Wilfond BS, et al. Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine. American Journal of Human Genetics. PMID 27181682 DOI: 10.1016/J.Ajhg.2016.04.011 |
0.408 |
|
| 2016 |
Kelley MC, Brazg T, Wilfond BS, Lengua LJ, Rivin BE, Martin-Herz SP, Diekema DS. Ethical challenges in research with orphans and vulnerable children: a qualitative study of researcher experiences. International Health. 8: 187-96. PMID 27178675 DOI: 10.1093/Inthealth/Ihw020 |
0.403 |
|
| 2016 |
Shah SK, Wilfond BS. The Role of Community Engagement in Novel HIV Research in Infants. Perspectives in Biology and Medicine. 58: 344-7. PMID 27157353 DOI: 10.1353/Pbm.2016.0013 |
0.305 |
|
| 2016 |
Diekema DS, Wilfond BS. Decision-Making for Children with Disabilities: Parental Discretion and Moral Ambiguity. Perspectives in Biology and Medicine. 58: 328-31. PMID 27157350 DOI: 10.1353/Pbm.2016.0007 |
0.326 |
|
| 2016 |
Grady C, Nogues I, Wiener L, Wilfond BS, Wendler D. Adolescent Research Participants' Descriptions of Medical Research. Ajob Empirical Bioethics. 7: 1-7. PMID 27004235 DOI: 10.1080/23294515.2015.1017059 |
0.397 |
|
| 2016 |
Korngiebel DM, McMullen CK, Amendola LM, Berg JS, Davis JV, Gilmore MJ, Harding CO, Himes P, Jarvik GP, Kauffman TL, Kennedy KA, Simpson DK, Leo MC, Lynch FL, Quigley DI, ... ... Wilfond BS, et al. Generating a taxonomy for genetic conditions relevant to reproductive planning. American Journal of Medical Genetics. Part A. 170: 565-73. PMID 26889673 DOI: 10.1002/Ajmg.A.37513 |
0.367 |
|
| 2016 |
Kelley M, James C, Alessi Kraft S, Korngiebel D, Wijangco I, Joffe S, Cho MK, Wilfond B, Lee SS. The Role of Patient Perspectives in Clinical Research Ethics and Policy: Response to Open Peer Commentaries on "Patient Perspectives on the Learning Health System". The American Journal of Bioethics : Ajob. 16: W7-9. PMID 26832115 DOI: 10.1080/15265161.2015.1125967 |
0.34 |
|
| 2016 |
Leo MC, McMullen C, Wilfond BS, Lynch FL, Reiss JA, Gilmore MJ, Himes P, Kauffman TL, Davis JV, Jarvik GP, Berg JS, Harding C, Kennedy KA, Simpson DK, Quigley DI, et al. Patients' ratings of genetic conditions validate a taxonomy to simplify decisions about preconception carrier screening via genome sequencing. American Journal of Medical Genetics. Part A. PMID 26792268 DOI: 10.1002/Ajmg.A.37477 |
0.343 |
|
| 2016 |
Lee SSJ, Kelley M, Cho MK, Kraft SA, James C, Constantine M, Meyer AN, Diekema D, Capron AM, Wilfond BS, Magnus D. Adrift in the gray zone: IRB perspectives on research in the learning health system Ajob Empirical Bioethics. 1-10. DOI: 10.1080/23294515.2016.1155674 |
0.321 |
|
| 2015 |
Peay HL, Scharff H, Tibben A, Wilfond B, Bowie J, Johnson J, Nagaraju K, Escolar D, Piacentino J, Biesecker BB. "Watching time tick by…": Decision making for Duchenne muscular dystrophy trials. Contemporary Clinical Trials. PMID 26546066 DOI: 10.1016/J.Cct.2015.11.006 |
0.341 |
|
| 2015 |
Cho MK, Magnus D, Wilfond BS. Informed Consent for Research on Medical Practices. Annals of Internal Medicine. 163: 725-6. PMID 26524577 DOI: 10.7326/L15-5152-2 |
0.347 |
|
| 2015 |
Taylor HA, Kuwana E, Wilfond BS. Is It Ethical to Enroll Cognitively Impaired Adults in Research That Is More Than Minimal Risk With No Prospect of Benefit? The American Journal of Bioethics : Ajob. 15: 64-5. PMID 26479112 DOI: 10.1080/15265161.2015.1075801 |
0.3 |
|
| 2015 |
Brothers KB, Holm IA, Childerhose JE, Antommaria AH, Bernhardt BA, Clayton EW, Gelb BD, Joffe S, Lynch JA, McCormick JB, McCullough LB, Parsons DW, Sundaresan AS, Wolf WA, Yu JH, ... Wilfond BS, et al. When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority. The Journal of Pediatrics. PMID 26477867 DOI: 10.1016/J.Jpeds.2015.09.020 |
0.327 |
|
| 2015 |
Welch MJ, Lally R, Miller JE, Pittman S, Brodsky L, Caplan AL, Uhlenbrauck G, Louzao DM, Fischer JH, Wilfond B. The ethics and regulatory landscape of including vulnerable populations in pragmatic clinical trials. Clinical Trials (London, England). PMID 26374681 DOI: 10.1177/1740774515597701 |
0.365 |
|
| 2015 |
McCullough LB, Brothers KB, Chung WK, Joffe S, Koenig BA, Wilfond B, Yu JH. Professionally Responsible Disclosure of Genomic Sequencing Results in Pediatric Practice. Pediatrics. PMID 26371191 DOI: 10.1542/Peds.2015-0624 |
0.335 |
|
| 2015 |
Grady C, Eckstein L, Berkman B, Brock D, Cook-Deegan R, Fullerton SM, Greely H, Hansson MG, Hull S, Kim S, Lo B, Pentz R, Rodriguez L, Weil C, Wilfond BS, et al. Broad Consent for Research With Biological Samples: Workshop Conclusions. The American Journal of Bioethics : Ajob. 15: 34-42. PMID 26305750 DOI: 10.1080/15265161.2015.1062162 |
0.414 |
|
| 2015 |
Kelley M, James C, Alessi Kraft S, Korngiebel D, Wijangco I, Rosenthal E, Joffe S, Cho MK, Wilfond B, Lee SS. Patient Perspectives on the Learning Health System: The Importance of Trust and Shared Decision Making. The American Journal of Bioethics : Ajob. 15: 4-17. PMID 26305741 DOI: 10.1080/15265161.2015.1062163 |
0.409 |
|
| 2015 |
Wilfond BS, Goddard KA. It's complicated: criteria for policy decisions for the clinical integration of genome-scale sequencing for reproductive decision making. Molecular Genetics & Genomic Medicine. 3: 239-42. PMID 26247041 DOI: 10.1002/Mgg3.130 |
0.374 |
|
| 2015 |
Botkin JR, Belmont JW, Berg JS, Berkman BE, Bombard Y, Holm IA, Levy HP, Ormond KE, Saal HM, Spinner NB, Wilfond BS, McInerney JD. Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents. American Journal of Human Genetics. 97: 6-21. PMID 26140447 DOI: 10.1016/J.Ajhg.2015.05.022 |
0.364 |
|
| 2015 |
Schneider JL, Goddard KA, Davis J, Wilfond B, Kauffman TL, Reiss JA, Gilmore M, Himes P, Lynch FL, Leo MC, McMullen C. "Is It Worth Knowing?" Focus Group Participants' Perceived Utility of Genomic Preconception Carrier Screening. Journal of Genetic Counseling. PMID 26093606 DOI: 10.1007/S10897-015-9851-7 |
0.372 |
|
| 2015 |
Wilfond BS, Magnus DC. The potential harms and benefits from research on medical practices. The Hastings Center Report. 45: 5-6. PMID 25944197 DOI: 10.1002/Hast.440 |
0.367 |
|
| 2015 |
Cho MK, Magnus D, Constantine M, Lee SS, Kelley M, Alessi S, Korngiebel D, James C, Kuwana E, Gallagher TH, Diekema D, Capron AM, Joffe S, Wilfond BS. Attitudes Toward Risk and Informed Consent for Research on Medical Practices: A Cross-sectional Survey. Annals of Internal Medicine. 162: 690-6. PMID 25868119 DOI: 10.7326/M15-0166 |
0.381 |
|
| 2015 |
Taylor HA, Kuwana E, Wilfond BS. Protecting research subject welfare in preventive trials for autosomal dominant Alzheimer's disease. The American Journal of Bioethics : Ajob. 15: 83-4. PMID 25856618 DOI: 10.1080/15265161.2015.1011009 |
0.374 |
|
| 2015 |
Shah A, Porter K, Juul S, Wilfond BS. Precluding consent by clinicians who are both the attending and the investigator: an outdated shibboleth? The American Journal of Bioethics : Ajob. 15: 80-2. PMID 25856617 DOI: 10.1080/15265161.2015.1011007 |
0.406 |
|
| 2015 |
Taylor HA, Kuwana E, Wilfond BS. Navigating parental permission for neonatal research. The American Journal of Bioethics : Ajob. 15: 76. PMID 25856614 DOI: 10.1080/15265161.2015.1011003 |
0.32 |
|
| 2015 |
Cho MK, Taylor H, McCormick JB, Anderson N, Barnard D, Boyle MB, Capron AM, Dorfman E, Havard K, Reider C, Sadler J, Schwartz P, Sharp RR, Danis M, Wilfond BS. Building a Central Repository for Research Ethics Consultation Data: A Proposal for a Standard Data Collection Tool. Clinical and Translational Science. PMID 25758372 DOI: 10.1111/Cts.12268 |
0.416 |
|
| 2015 |
Wiener L, Viola A, Wilfond BS, Wendler D, Grady C. Contrasting views of risk perception and influence of financial compensation between adolescent research participants and their parents. Journal of Empirical Research On Human Research Ethics : Jerhre. 10: 49-58. PMID 25742666 DOI: 10.1177/1556264614563249 |
0.341 |
|
| 2015 |
Amendola LM, Dorschner MO, Robertson PD, Salama JS, Hart R, Shirts BH, Murray ML, Tokita MJ, Gallego CJ, Kim DS, Bennett JT, Crosslin DR, Ranchalis J, Jones KL, Rosenthal EA, ... ... Wilfond B, et al. Actionable exomic incidental findings in 6503 participants: challenges of variant classification. Genome Research. 25: 305-15. PMID 25637381 DOI: 10.1101/Gr.183483.114 |
0.328 |
|
| 2015 |
Sharp RR, Taylor HA, Brinich MA, Boyle MM, Cho M, Coors M, Danis M, Havard M, Magnus D, Wilfond B. Research ethics consultation: ethical and professional practice challenges and recommendations. Academic Medicine : Journal of the Association of American Medical Colleges. 90: 615-20. PMID 25607942 DOI: 10.1097/Acm.0000000000000640 |
0.406 |
|
| 2015 |
Magnus D, Wilfond BS. Research on medical practices and the ethics of disclosure. Pediatrics. 135: 208-10. PMID 25583909 DOI: 10.1542/Peds.2014-3578 |
0.437 |
|
| 2015 |
Botkin JR, Belmont JW, Berg JS, Berkman BE, Bombard Y, Holm IA, Levy HP, Ormond KE, Saal HM, Spinner NB, Wilfond BS, McInerney JD. Erratum: Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents (The American Journal of Human Genetics (2015) 97 (6-21)) American Journal of Human Genetics. 97: 1925. DOI: 10.1016/J.Ajhg.2015.07.013 |
0.307 |
|
| 2014 |
Taylor HA, Kuwana E, Wilfond BS. Ethical implications of social media in health care research. The American Journal of Bioethics : Ajob. 14: 58-9. PMID 25229593 DOI: 10.1080/15265161.2014.947820 |
0.31 |
|
| 2014 |
Camp KM, Parisi MA, Acosta PB, Berry GT, Bilder DA, Blau N, Bodamer OA, Brosco JP, Brown CS, Burlina AB, Burton BK, Chang CS, Coates PM, Cunningham AC, Dobrowolski SF, ... ... Wilfond BS, et al. Phenylketonuria Scientific Review Conference: state of the science and future research needs. Molecular Genetics and Metabolism. 112: 87-122. PMID 24667081 DOI: 10.1016/J.Ymgme.2014.02.013 |
0.367 |
|
| 2014 |
Grady C, Wiener L, Abdoler E, Trauernicht E, Zadeh S, Diekema DS, Wilfond BS, Wendler D. Assent in research: the voices of adolescents. The Journal of Adolescent Health : Official Publication of the Society For Adolescent Medicine. 54: 515-20. PMID 24630932 DOI: 10.1016/J.Jadohealth.2014.02.005 |
0.316 |
|
| 2014 |
Wilfond BS. Tracheostomies and assisted ventilation in children with profound disabilities: navigating family and professional values. Pediatrics. 133: S44-9. PMID 24488540 DOI: 10.1542/Peds.2013-3608H |
0.332 |
|
| 2014 |
Botkin JR, Lewis MH, Watson MS, Swoboda KJ, Anderson R, Berry SA, Bonhomme N, Brosco JP, Comeau AM, Goldenberg A, Goldman E, Therrell B, Levy-Fisch J, Tarini B, Wilfond B, et al. Parental permission for pilot newborn screening research: guidelines from the NBSTRN. Pediatrics. 133: e410-7. PMID 24394680 DOI: 10.1542/Peds.2013-2271 |
0.422 |
|
| 2014 |
Peay H, Scharff H, Biesecker B, Wilfond B, Johnson J, Escolar D, Nagaraju K, Piacentino J, Bowie J, Tibben A. G.P.303 Neuromuscular Disorders. 24: 912-913. DOI: 10.1016/J.Nmd.2014.06.393 |
0.354 |
|
| 2014 |
Peay H, Scharff H, Biesecker B, Wilfond B, Johnson J, Escolar D, Bowie J, Nagaraju K, Piacentino J, Tibben A. G.P.302 Neuromuscular Disorders. 24: 912. DOI: 10.1016/J.Nmd.2014.06.392 |
0.314 |
|
| 2013 |
Wilfond BS. Quality improvement ethics: lessons from the SUPPORT study. The American Journal of Bioethics : Ajob. 13: 14-9. PMID 24256524 DOI: 10.1080/15265161.2013.851582 |
0.425 |
|
| 2013 |
Taylor HA, Wilfond BS. Managing disclosure of research misconduct by a graduate student to a university mental health professional during a clinical counseling session. The American Journal of Bioethics : Ajob. 13: 68. PMID 24024820 DOI: 10.1080/15265161.2013.828534 |
0.344 |
|
| 2013 |
Taylor HA, Wilfond BS. The ethics of contacting family members of a subject in a genetic research study to return results for an autosomal dominant syndrome. The American Journal of Bioethics : Ajob. 13: 61. PMID 24024816 DOI: 10.1080/15265161.2013.828523 |
0.378 |
|
| 2013 |
Burke W, Antommaria AH, Bennett R, Botkin J, Clayton EW, Henderson GE, Holm IA, Jarvik GP, Khoury MJ, Knoppers BM, Press NA, Ross LF, Rothstein MA, Saal H, Uhlmann WR, ... Wilfond B, et al. Recommendations for returning genomic incidental findings? We need to talk! Genetics in Medicine : Official Journal of the American College of Medical Genetics. 15: 854-9. PMID 23907645 DOI: 10.1038/Gim.2013.113 |
0.349 |
|
| 2013 |
Wade CH, Tarini BA, Wilfond BS. Growing up in the genomic era: implications of whole-genome sequencing for children, families, and pediatric practice. Annual Review of Genomics and Human Genetics. 14: 535-55. PMID 23875800 DOI: 10.1146/Annurev-Genom-091212-153425 |
0.364 |
|
| 2013 |
Wilfond BS, Magnus D, Antommaria AH, Appelbaum P, Aschner J, Barrington KJ, Beauchamp T, Boss RD, Burke W, Caplan AL, Capron AM, Cho M, Clayton EW, Cole FS, Darlow BA, et al. The OHRP and SUPPORT. The New England Journal of Medicine. 368: e36. PMID 23738513 DOI: 10.1056/Nejmc1307008 |
0.346 |
|
| 2013 |
Melvin AJ, Edwards K, Malone J, Hassell L, Wilfond BS. Role for CTSAs in leveraging a distributed research infrastructure to engage diverse stakeholders in emergent research policy development. Clinical and Translational Science. 6: 57-9. PMID 23399091 DOI: 10.1111/J.1752-8062.2012.00444.X |
0.38 |
|
| 2013 |
McCormick JB, Sharp RR, Ottenberg AL, Reider CR, Taylor HA, Wilfond BS. The establishment of research ethics consultation services (RECS): an emerging research resource. Clinical and Translational Science. 6: 40-4. PMID 23399088 DOI: 10.1111/Cts.12008 |
0.387 |
|
| 2012 |
Mai PL, Malkin D, Garber JE, Schiffman JD, Weitzel JN, Strong LC, Wyss O, Locke L, Means V, Achatz MI, Hainaut P, Frebourg T, Evans DG, Bleiker E, Patenaude A, ... ... Wilfond B, et al. Li-Fraumeni syndrome: report of a clinical research workshop and creation of a research consortium. Cancer Genetics. 205: 479-87. PMID 22939227 DOI: 10.1016/J.Cancergen.2012.06.008 |
0.347 |
|
| 2012 |
Wilfond B. Predicting our future: lessons from Winnie-the-Pooh. The Hastings Center Report. 42: 3. PMID 22777968 DOI: 10.1002/Hast.56 |
0.307 |
|
| 2012 |
Beskow LM, Fullerton SM, Namey EE, Nelson DK, Davis AM, Wilfond BS. Recommendations for ethical approaches to genotype-driven research recruitment. Human Genetics. 131: 1423-31. PMID 22622788 DOI: 10.1007/S00439-012-1177-Z |
0.442 |
|
| 2012 |
Wolf SM, Crock BN, Van Ness B, Lawrenz F, Kahn JP, Beskow LM, Cho MK, Christman MF, Green RC, Hall R, Illes J, Keane M, Knoppers BM, Koenig BA, Kohane IS, ... ... Wilfond BS, et al. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 14: 361-84. PMID 22436882 DOI: 10.1038/Gim.2012.23 |
0.4 |
|
| 2012 |
Wilfond BS, Diekema DS. Engaging children in genomics research: decoding the meaning of assent in research. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 14: 437-43. PMID 22323071 DOI: 10.1038/Gim.2012.9 |
0.394 |
|
| 2011 |
Tabor HK, Brazg T, Crouch J, Namey EE, Fullerton SM, Beskow LM, Wilfond BS. Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment. Journal of Empirical Research On Human Research Ethics : Jerhre. 6: 41-52. PMID 22228059 DOI: 10.1525/Jer.2011.6.4.41 |
0.402 |
|
| 2011 |
Beskow LM, Namey EE, Cadigan RJ, Brazg T, Crouch J, Henderson GE, Michie M, Nelson DK, Tabor HK, Wilfond BS. Research participants' perspectives on genotype-driven research recruitment. Journal of Empirical Research On Human Research Ethics : Jerhre. 6: 3-20. PMID 22228056 DOI: 10.1525/Jer.2011.6.4.3 |
0.43 |
|
| 2011 |
Tarini BA, Tercyak KP, Wilfond BS. Commentary: Children and predictive genomic testing: disease prevention, research protection, and our future. Journal of Pediatric Psychology. 36: 1113-21. PMID 21816897 DOI: 10.1093/Jpepsy/Jsr040 |
0.402 |
|
| 2011 |
Tercyak KP, Hensley Alford S, Emmons KM, Lipkus IM, Wilfond BS, McBride CM. Parents' attitudes toward pediatric genetic testing for common disease risk. Pediatrics. 127: e1288-95. PMID 21502235 DOI: 10.1542/Peds.2010-0938 |
0.304 |
|
| 2011 |
Bookman EB, Langehorne AA, Eckfeldt JH, Glass KC, Jarvik GP, Klag M, Koski G, Motulsky A, Wilfond B, Manolio TA, Fabsitz RR, Luepker RV. Comment on "Multidimensional results reporting to participants in genomic studies: getting it right". Science Translational Medicine. 3: 70le1. PMID 21325615 DOI: 10.1126/Scitranslmed.3001516 |
0.332 |
|
| 2011 |
Goldenberg AJ, Hull SC, Wilfond BS, Sharp RR. Patient perspectives on group benefits and harms in genetic research. Public Health Genomics. 14: 135-42. PMID 20938159 DOI: 10.1159/000317497 |
0.346 |
|
| 2011 |
Richer J, Ghebremichael MS, Chudley AE, Robinson WM, Wilfond BS, Solomon MZ. Research use of leftover newborn bloodspots: attitudes of Canadian geneticists regarding storage and informed consent requirements. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 13: 305-13. PMID 20921895 DOI: 10.1097/Gim.0B013E3181F69Da0 |
0.371 |
|
| 2010 |
Wilfond BS, Miller PS, Korfiatis C, Diekema DS, Dudzinski DM, Goering S. Navigating growth attenuation in children with profound disabilities. Children's interests, family decision-making, and community concerns. The Hastings Center Report. 40: 27-40. PMID 21155109 DOI: 10.1002/J.1552-146X.2010.Tb00075.X |
0.324 |
|
| 2010 |
Wade CH, Wilfond BS, McBride CM. Effects of genetic risk information on children's psychosocial wellbeing: a systematic review of the literature. Genetics in Medicine : Official Journal of the American College of Medical Genetics. 12: 317-26. PMID 20445458 DOI: 10.1097/Gim.0B013E3181De695C |
0.367 |
|
| 2009 |
Opel DJ, Wilfond BS, Brownstein D, Diekema DS, Pearlman RA. Characterisation of organisational issues in paediatric clinical ethics consultation: a qualitative study. Journal of Medical Ethics. 35: 477-82. PMID 19644005 DOI: 10.1136/Jme.2008.027896 |
0.368 |
|
| 2009 |
Goldenberg AJ, Hull SC, Botkin JR, Wilfond BS. Pediatric biobanks: approaching informed consent for continuing research after children grow up. The Journal of Pediatrics. 155: 578-83. PMID 19595370 DOI: 10.1016/J.Jpeds.2009.04.034 |
0.34 |
|
| 2009 |
Opel DJ, Wilfond BS. Cosmetic surgery in children with cognitive disabilities: who benefits? Who decides? The Hastings Center Report. 39: 19-21. PMID 19213189 DOI: 10.1353/Hcr.0.0099 |
0.301 |
|
| 2009 |
Wilfond B, Ross LF. From genetics to genomics: ethics, policy, and parental decision-making. Journal of Pediatric Psychology. 34: 639-47. PMID 18647793 DOI: 10.1093/Jpepsy/Jsn075 |
0.379 |
|
| 2008 |
Wilfond BS. The Genetic Information Nondiscrimination Act: fear factor or fantasy island? The Hastings Center Report. 38: 11-2. PMID 19192707 DOI: 10.1353/Hcr.0.0077 |
0.394 |
|
| 2008 |
Hull SC, Sharp RR, Botkin JR, Brown M, Hughes M, Sugarman J, Schwinn D, Sankar P, Bolcic-Jankovic D, Clarridge BR, Wilfond BS. Patients' views on identifiability of samples and informed consent for genetic research. The American Journal of Bioethics : Ajob. 8: 62-70. PMID 19003716 DOI: 10.1080/15265160802478404 |
0.391 |
|
| 2008 |
Denny CC, Wilfond BS, Peters JA, Giri N, Alter BP. All in the family: disclosure of "unwanted" information to an adolescent to benefit a relative. American Journal of Medical Genetics. Part A. 146: 2719-24. PMID 18831063 DOI: 10.1002/Ajmg.A.32362 |
0.361 |
|
| 2008 |
Kelley M, Fryer-Edwards K, Fullerton SM, Gallagher TH, Wilfond B. Sharing data and experience: using the Clinical and Translational Science Award (CTSA) "moral community" to improve research ethics consultation. The American Journal of Bioethics : Ajob. 8: 37-9; discussion W4-. PMID 18570101 DOI: 10.1080/15265160802109397 |
0.351 |
|
| 2008 |
Wilfond BS, Carpenter KJ. Incidental findings in pediatric research. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 36: 332-40, 213. PMID 18547202 DOI: 10.1111/J.1748-720X.2008.00277.X |
0.388 |
|
| 2008 |
Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, ... ... Wilfond BS, et al. Managing incidental findings in human subjects research: analysis and recommendations. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 36: 219-48, 211. PMID 18547191 DOI: 10.1111/J.1748-720X.2008.00266.X |
0.396 |
|
| 2008 |
Tarini BA, Burke W, Scott CR, Wilfond BS. Waiving informed consent in newborn screening research: balancing social value and respect. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics. 148: 23-30. PMID 18200521 DOI: 10.1002/Ajmg.C.30164 |
0.419 |
|
| 2007 |
Wilfond B. Ethical considerations about observational research in children. The Journal of Trauma. 63: S146-51; discussion . PMID 18091208 DOI: 10.1097/Ta.0B013E31815Acd60 |
0.423 |
|
| 2007 |
Henderson GE, Churchill LR, Davis AM, Easter MM, Grady C, Joffe S, Kass N, King NM, Lidz CW, Miller FG, Nelson DK, Peppercorn J, Rothschild BB, Sankar P, Wilfond BS, et al. Clinical trials and medical care: defining the therapeutic misconception. Plos Medicine. 4: e324. PMID 18044980 DOI: 10.1371/Journal.Pmed.0040324 |
0.377 |
|
| 2007 |
Wilfond BS. The Ashley case: the public response and policy implications. The Hastings Center Report. 37: 12-3. PMID 17966832 DOI: 10.1353/Hcr.2007.0081 |
0.34 |
|
| 2007 |
Comeau AM, Accurso FJ, White TB, Campbell PW, Hoffman G, Parad RB, Wilfond BS, Rosenfeld M, Sontag MK, Massie J, Farrell PM, O'Sullivan BP. Guidelines for implementation of cystic fibrosis newborn screening programs: Cystic Fibrosis Foundation workshop report. Pediatrics. 119: e495-518. PMID 17272609 DOI: 10.1542/Peds.2006-1993 |
0.587 |
|
| 2006 |
Ravitsky V, Wilfond BS. Disclosing individual genetic results to research participants. The American Journal of Bioethics : Ajob. 6: 8-17. PMID 17085395 DOI: 10.1080/15265160600934772 |
0.678 |
|
| 2006 |
Wade CH, Wilfond BS. Ethical and clinical practice considerations for genetic counselors related to direct-to-consumer marketing of genetic tests. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics. 142: 284-92, discussion 2. PMID 17068807 DOI: 10.1002/Ajmg.C.30110 |
0.329 |
|
| 2006 |
Botkin JR, Clayton EW, Fost NC, Burke W, Murray TH, Baily MA, Wilfond B, Berg A, Ross LF. Newborn screening technology: proceed with caution. Pediatrics. 117: 1793-9. PMID 16651338 DOI: 10.1542/Peds.2005-2547 |
0.335 |
|
| 2006 |
Bookman EB, Langehorne AA, Eckfeldt JH, Glass KC, Jarvik GP, Klag M, Koski G, Motulsky A, Wilfond B, Manolio TA, Fabsitz RR, Luepker RV. Reporting genetic results in research studies: summary and recommendations of an NHLBI working group. American Journal of Medical Genetics. Part A. 140: 1033-40. PMID 16575896 DOI: 10.1002/Ajmg.A.31195 |
0.402 |
|
| 2006 |
Loud JT, Weissman NE, Peters JA, Giusti RM, Wilfond BS, Burke W, Greene MH. Deliberate deceit of family members: a challenge to providers of clinical genetics services. Journal of Clinical Oncology : Official Journal of the American Society of Clinical Oncology. 24: 1643-6. PMID 16575016 DOI: 10.1200/Jco.2005.02.6203 |
0.313 |
|
| 2006 |
Shoff SM, Ahn HY, Davis L, Lai H, Douglas J, Fost N, Green C, Gregg R, Kosorok M, Laessig R, Palta M, Rock M, Rosenberg M, Tluezek A, Wei LJ, ... ... Wilfond B, et al. Temporal associations among energy intake, plasma linoleic acid, and growth improvement in response to treatment initiation after diagnosis of cystic fibrosis Pediatrics. 117: 391-400. PMID 16452358 DOI: 10.1542/Peds.2004-2832 |
0.534 |
|
| 2006 |
Henderson GE, Easter MM, Zimmer C, King NM, Davis AM, Rothschild BB, Churchill LR, Wilfond BS, Nelson DK. Therapeutic misconception in early phase gene transfer trials. Social Science & Medicine (1982). 62: 239-53. PMID 16000230 DOI: 10.1016/J.Socscimed.2005.05.022 |
0.346 |
|
| 2006 |
Ravitsky V, Wilfond BS. Response to open peer commentaries on "Disclosing individual genetic results to research participants": Defining clinical utility and revisiting the role of relationships [1] American Journal of Bioethics. 6: W10-W12. DOI: 10.1080/15265160601021272 |
0.649 |
|
| 2005 |
Wilfond BS, Parad RB, Fost N. Balancing benefits and risks for cystic fibrosis newborn screening: implications for policy decisions. The Journal of Pediatrics. 147: S109-13. PMID 16202773 DOI: 10.1016/J.Jpeds.2005.08.019 |
0.617 |
|
| 2005 |
Lands LC, Allen J, Cloutier M, Leigh M, McColley S, Murphy T, Wilfond B. ATS Consensus Statement: Research opportunities and challenges in pediatric pulmonology. American Journal of Respiratory and Critical Care Medicine. 172: 776-80. PMID 16148195 DOI: 10.1164/Rccm.200405-661St |
0.383 |
|
| 2005 |
Wilfond BS, Ravitsky V. On the proliferation of bioethics sub-disciplines: do we really need "genethics" and "neuroethics"? The American Journal of Bioethics : Ajob. 5: 20-1; discussion W3-. PMID 16036690 DOI: 10.1080/15265160590960924 |
0.57 |
|
| 2005 |
Henderson GE, Easter ME, Zimmer C, King NMP, Davis AM, Rothschild BB, Churchill LR, Wilfond BS, Nelson DK. 1078. Therapeutic Misconception in Early Phase Gene Transfer Trials Molecular Therapy. 11. DOI: 10.1016/J.Ymthe.2005.07.625 |
0.338 |
|
| 2004 |
Taylor HA, Wilfond BS. Ethical issues in newborn screening research: lessons from the Wisconsin cystic fibrosis trial. The Journal of Pediatrics. 145: 292-6. PMID 15343177 DOI: 10.1016/J.Jpeds.2004.04.010 |
0.375 |
|
| 2004 |
Henderson GE, Davis AM, King NM, Easter MM, Zimmer CR, Rothschild BB, Wilfond BS, Nelson DK, Churchill LR. Uncertain benefit: investigators' views and communications in early phase gene transfer trials. Molecular Therapy : the Journal of the American Society of Gene Therapy. 10: 225-31. PMID 15294169 DOI: 10.1016/J.Ymthe.2004.05.013 |
0.329 |
|
| 2004 |
Whittle A, Shah S, Wilfond B, Gensler G, Wendler D. Institutional review board practices regarding assent in pediatric research. Pediatrics. 113: 1747-52. PMID 15173501 DOI: 10.1542/Peds.113.6.1747 |
0.351 |
|
| 2004 |
Freund CL, Clayton EW, Wilfond BS. Natural settings trials--improving the introduction of clinical genetic tests. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 32: 106-10. PMID 15152432 DOI: 10.1111/J.1748-720X.2004.Tb00454.X |
0.362 |
|
| 2004 |
Shah S, Whittle A, Wilfond B, Gensler G, Wendler D. How do institutional review boards apply the federal risk and benefit standards for pediatric research? Jama. 291: 476-82. PMID 14747505 DOI: 10.1001/Jama.291.4.476 |
0.38 |
|
| 2004 |
Hull SC, Gooding H, Klein AP, Warshauer-Baker E, Metosky S, Wilfond BS. Genetic Research Involving Human Biological Materials: A Need to Tailor Consent Forms Irb: Ethics and Human Research. 26: 1. DOI: 10.2307/3563748 |
0.337 |
|
| 2003 |
Wendler D, Shah S, Whittle A, Wilfond BS. Nonbeneficial research with individuals who cannot consent: is it ethically better to enroll healthy or affected individuals? Irb. 25: 1-4. PMID 14649246 DOI: 10.2307/3563816 |
0.35 |
|
| 2003 |
Churchill LR, Nelson DK, Henderson GE, King NM, Davis AM, Leahey E, Wilfond BS. Assessing benefits in clinical research: why diversity in benefit assessment can be risky. Irb. 25: 1-8. PMID 14569987 DOI: 10.2307/3564297 |
0.34 |
|
| 2003 |
Gollust SE, Wilfond BS, Hull SC. Direct-to-consumer sales of genetic services on the Internet Genetics in Medicine. 5: 332-337. PMID 12865763 DOI: 10.1097/01.Gim.0000076972.83711.48 |
0.304 |
|
| 2003 |
Koogler TK, Wilfond BS, Ross LF. Lethal language, lethal decisions Hastings Center Report. 33: 37-41. PMID 12760119 DOI: 10.2307/3528153 |
0.337 |
|
| 2002 |
Horng S, Emanuel EJ, Wilfond B, Rackoff J, Martz K, Grady C. Descriptions of benefits and risks in consent forms for phase 1 oncology trials New England Journal of Medicine. 347: 2134-2140. PMID 12501226 DOI: 10.1056/Nejmsa021182 |
0.467 |
|
| 2002 |
Davis AM, Hull SC, Grady C, Wilfond BS, Henderson GE. The invisible hand in clinical research: the study coordinator's critical role in human subjects protection. The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 30: 411-9. PMID 12497701 DOI: 10.1111/J.1748-720X.2002.Tb00410.X |
0.375 |
|
| 2002 |
Wendler D, Prasad K, Wilfond B. Does the current consent process minimize the risks of genetics research? American Journal of Medical Genetics. 113: 258-262. PMID 12439893 DOI: 10.1002/Ajmg.10818 |
0.411 |
|
| 2002 |
Freund CL, Wilfond BS. Emerging ethical issues in pharmacogenomics: From research to clinical practice American Journal of Pharmacogenomics. 2: 273-281. PMID 12421098 DOI: 10.2165/00129785-200202040-00007 |
0.377 |
|
| 2002 |
Wilfond B, Rothenberg LS. Ethical issues in cystic fibrosis newborn screening: From data to public health policy Current Opinion in Pulmonary Medicine. 8: 529-534. PMID 12394162 DOI: 10.1097/00063198-200211000-00008 |
0.348 |
|
| 2002 |
Gollust SE, Hull SC, Wilfond BS. Limitations of direct-to-consumer advertising for clinical genetic testing Journal of the American Medical Association. 288: 1762-1767. PMID 12365961 DOI: 10.1001/Jama.288.14.1762 |
0.332 |
|
| 2001 |
Nelson RM, Botkin JR, Kodish ED, Levetown M, Truman JT, Wilfond BS, Harrison CE, Kazura A, Krug E, Schwartz PA, Donovan GK, Fallat M, Porter IH, Steinberg D. Ethical issues with genetic testing in pediatrics Pediatrics. 107: 1451-1455. PMID 11389275 DOI: 10.1542/Peds.107.6.1451 |
0.377 |
|
| 2001 |
Nelson RM, Botkin JR, Kodish ED, Levetown M, Truman JT, Wilfond BS, Harrison CE, Kazura A, Krug E, Schwartz PA, Donovan GK, Fallat ME, Davis DS. Institutional ethics committees Pediatrics. 107: 205-209. PMID 11134464 DOI: 10.1542/Peds.107.1.205 |
0.334 |
|
| 2000 |
Burger IM, Wilfond BS. Limitations of informed consent for in utero gene transfer research: Implications for investigators and institutional review boards Human Gene Therapy. 11: 1057-1063. PMID 10811234 DOI: 10.1089/10430340050015365 |
0.4 |
|
| 1998 |
Loeben GL, Marteau TM, Wilfond BS. Mixed messages: Presentation of information in cystic fibrosis-screening pamphlets American Journal of Human Genetics. 63: 1181-1189. PMID 9758594 DOI: 10.1086/302036 |
0.319 |
|
| 1998 |
Burke W, Thomson E, Khoury MJ, McDonnell SM, Press N, Adams PC, Barton JC, Beutler E, Brittenham G, Buchanan A, Clayton EW, Cogswell ME, Meslin EM, Motulsky AG, Powell LW, ... ... Wilfond BS, et al. Hereditary hemochromatosis: gene discovery and its implications for population-based screening. Jama. 280: 172-8. PMID 9669792 DOI: 10.1001/Jama.280.2.172 |
0.374 |
|
| 1997 |
Wilfond BS, Rothenberg KH, Thomson EJ, Lerman C. Cancer genetic susceptibility testing: ethical and policy implications for future research and clinical practice. Cancer Genetic Studies Consortium, National Institutes of Health The Journal of Law, Medicine & Ethics : a Journal of the American Society of Law, Medicine & Ethics. 25: 243-251, 230. PMID 11066506 DOI: 10.1111/J.1748-720X.1997.Tb01406.X |
0.361 |
|
| 1995 |
Wilfond BS. Screening policy for cystic fibrosis: the role of evidence. Hastings Center Report. 25. DOI: 10.2307/3562127 |
0.361 |
|
| 1993 |
Wilfond BS, Nolan K. National Policy Development for the Clinical Application of Genetic Diagnostic Technologies: Lessons From Cystic Fibrosis Jama: the Journal of the American Medical Association. 270: 2948-2954. PMID 8254856 DOI: 10.1001/Jama.1993.03510240060033 |
0.38 |
|
| 1992 |
Wilfond BS, Fost N. The introduction of cystic fibrosis carrier screening into clinical practice: policy considerations The Milbank Quarterly. 70: 629-659. PMID 1435628 DOI: 10.2307/3350214 |
0.373 |
|
| 1991 |
Farrell PM, Mischler EH, Fost NC, Wilfond BS, Tluczek A, Gregg RG, Bruns WT, Hassemer DJ, Laessig RH. Current issues in neonatal screening for cystic fibrosis and implications of the CF gene discovery Pediatric Pulmonology. Supplement. 7: 11-18. PMID 1782123 DOI: 10.1002/Ppul.1950110704 |
0.322 |
|
| 1990 |
Wilfond BS, Fost N. The Cystic Fibrosis Gene: Medical and Social Implications for Heterozygote Detection Jama: the Journal of the American Medical Association. 263: 2777-2783. PMID 2332921 DOI: 10.1001/Jama.1990.03440200081027 |
0.345 |
|
| 1990 |
Wilfond B. Cystic Fibrosis and Heterozygote Fitness-Reply Jama: the Journal of the American Medical Association. 264: 2867. DOI: 10.1001/Jama.1990.03450220029011 |
0.367 |
|
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