| Year |
Citation |
Score |
| 2024 |
Smirnova N, Lowers J, Cammarata-Mouchtouris A, Dellon EP, Fitzpatrick A, Kavalieratos D. Symptoms and quality of life in adults with cystic fibrosis: A cross-sectional analysis of the InSPIRe:CF trial. Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society. PMID 38461123 DOI: 10.1016/j.jcf.2024.03.005 |
0.315 |
|
| 2023 |
Dellon EP, Goggin J. End-of-life care in cystic fibrosis in the era of new therapies. The Lancet. Respiratory Medicine. 11: 861-863. PMID 37699422 DOI: 10.1016/S2213-2600(23)00260-6 |
0.393 |
|
| 2022 |
Lowers J, Dellon EP, Stephenson A, Arnold R, Althouse A, Jeong K, Dubin E, Soodalter J, Hovater C, Bakitas M, Goggin J, Hunt W, Ladores S, Curseen K, Winter G, et al. Integrating specialist palliative care to improve care and reduce suffering: cystic fibrosis (InSPIRe:CF) - study protocol for a multicentre randomised clinical trial. Bmj Open Respiratory Research. 9. PMID 36126995 DOI: 10.1136/bmjresp-2022-001381 |
0.49 |
|
| 2022 |
Trandel ET, Lowers J, Bannon ME, Moreines LT, Dellon EP, White P, Cross SH, Quest TE, Lagnese K, Krishnamurti T, Arnold RM, Harrison KL, Patzer RE, Wang L, Zarrabi AJ, et al. Barriers of Acceptance to Hospice Care: a Randomized Vignette-Based Experiment. Journal of General Internal Medicine. PMID 35319086 DOI: 10.1007/s11606-022-07468-7 |
0.32 |
|
| 2021 |
Todd SH, Sonntag EA, Buchanan ML, Jones BW, Dellon EP, Donaldson SH, Goralski JL. Development of an Advance Care Planning Protocol in a Cystic Fibrosis Outpatient Clinic. Journal of Palliative Medicine. PMID 34191614 DOI: 10.1089/jpm.2021.0186 |
0.47 |
|
| 2021 |
Basile M, Jojan L, Hobler MR, Dellon EP, Georgiopoulos AM, Goggin JL, Chen E, Goss CH, Hempstead SE, Faro A, Kavalieratos D. Assessing Practices, Beliefs, and Attitudes about Palliative Care among People with Cystic Fibrosis, Their Caregivers, and Clinicians: Results of a Content Analysis. Journal of Palliative Medicine. PMID 33885355 DOI: 10.1089/jpm.2020.0725 |
0.415 |
|
| 2020 |
Kavalieratos D, Georgiopoulos AM, Dhingra L, Basile MJ, Rabinowitz E, Hempstead SE, Faro A, Dellon EP. Models of Palliative Care Delivery for Individuals with Cystic Fibrosis: Cystic Fibrosis Foundation Evidence-Informed Consensus Guidelines. Journal of Palliative Medicine. PMID 32936045 DOI: 10.1089/Jpm.2020.0311 |
0.546 |
|
| 2020 |
Kapnadak SG, Ramos KJ, Dellon EP. Enhancing Care for Individuals with Advanced Cystic Fibrosis Lung Disease. Pediatric Pulmonology. PMID 32609949 DOI: 10.1002/Ppul.24937 |
0.543 |
|
| 2020 |
Hoppe JE, Guimbellot J, Martiniano SL, Toprak D, Davis C, Daines CL, Muhlebach MS, Esther CR, Dellon EP. Highlights From the 2019 North American Cystic Fibrosis Conference. Pediatric Pulmonology. PMID 32573948 DOI: 10.1002/Ppul.24919 |
0.412 |
|
| 2020 |
Trandel ET, Kavalieratos D, Basile M, Hobler MR, Georgiopoulos AM, Chen E, Goggin JL, Goss CH, Hempstead SE, Faro A, Dellon EP. Palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members. Pediatric Pulmonology. PMID 32384215 DOI: 10.1002/Ppul.24806 |
0.538 |
|
| 2020 |
Kapnadak SG, Dimango E, Hadjiliadis D, Hempstead SE, Tallarico E, Pilewski JM, Faro A, Albright J, Benden C, Blair S, Dellon EP, Gochenour D, Michelson P, Moshiree B, Neuringer I, et al. Cystic Fibrosis Foundation consensus guidelines for the care of individuals with advanced cystic fibrosis lung disease. Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society. PMID 32115388 DOI: 10.1016/J.Jcf.2020.02.015 |
0.5 |
|
| 2020 |
Dellon EP, Basile M, Hobler MR, Georgiopoulos AM, Chen E, Goggin J, Goss CH, Hempstead SE, Faro A, Kavalieratos D. Palliative Care Needs of Individuals with Cystic Fibrosis: Perspectives of Multiple Stakeholders. Journal of Palliative Medicine. PMID 32023421 DOI: 10.1089/Jpm.2019.0464 |
0.54 |
|
| 2020 |
Childers J, Dellon E, Zimmerman K. Measuring the Impact of Pediatric Palliative Care on Hospital Utilization and Costs Among Children with Complex Chronic Conditions Approaching Death (FR481A) Journal of Pain and Symptom Management. 59: 486. DOI: 10.1016/J.Jpainsymman.2019.12.184 |
0.358 |
|
| 2019 |
Trandel ET, Pilewski JM, Dellon EP, Jeong K, Yabes JG, Moreines LT, Arnold RM, Hoydich ZP, Kavalieratos D. Prevalence of unmet palliative care needs in adults with cystic fibrosis. Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society. PMID 31862306 DOI: 10.1016/J.Jcf.2019.11.010 |
0.523 |
|
| 2019 |
Obregon LL, Jeong K, Hoydich ZP, Yabes J, Pilewski J, Richless C, Moreines LT, Dellon EP, Goss CH, Arnold RM, Kavalieratos D. Associations between demographic characteristics and unmet supportive care needs in adults with cystic fibrosis. Bmj Supportive & Palliative Care. PMID 31473650 DOI: 10.1136/Bmjspcare-2019-001819 |
0.541 |
|
| 2019 |
Trandel ET, Pilewski JM, Dellon EP, Moreines LT, Yabes JG, Jeong K, Arnold RM, Kavalieratos D. Symptom Burden and Unmet Existential Needs in Adults With Cystic Fibrosis. Western Journal of Nursing Research. 193945919852585. PMID 31267835 DOI: 10.1177/0193945919852585 |
0.436 |
|
| 2019 |
Martiniano SL, Daines CL, Dellon EP, Esther CR, Muhlebach MS, Ong T, Rabinowitz EC, Toprak D, Zemanick ET. Highlights from the 2018 North American cystic fibrosis conference. Pediatric Pulmonology. PMID 31091021 DOI: 10.1002/Ppul.24356 |
0.468 |
|
| 2019 |
Hailey CE, Tan JW, Dellon EP, Park EM. Pursuing parenthood with cystic fibrosis: Reproductive health and parenting concerns in individuals with cystic fibrosis. Pediatric Pulmonology. PMID 31066212 DOI: 10.1002/Ppul.24344 |
0.402 |
|
| 2019 |
Jones LA, Doucette L, Dellon EP, Esther CR, McKinzie CJ. Use of inhaled imipenem/cilastatin in pediatric patients with cystic fibrosis: A case series. Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society. PMID 31060800 DOI: 10.1016/J.Jcf.2019.04.017 |
0.377 |
|
| 2019 |
Dellon E, Hobler M, Georgiopoulos A, Chen E, Goggin J, Hempstead S, Faro A, Kavalieratos D. Barriers to Palliative Care in Cystic Fibrosis (S863) Journal of Pain and Symptom Management. 57: 515. DOI: 10.1016/J.Jpainsymman.2018.12.313 |
0.512 |
|
| 2019 |
Dellon E, Hobler M, Georgiopoulos A, Goggin J, Chen E, Hempstead S, Faro A, Kavalieratos D. Palliative Care Needs of Individuals with Cystic Fibrosis: A National Survey of Patients, Caregivers, and Cystic Fibrosis Care Team Members (S862) Journal of Pain and Symptom Management. 57: 514. DOI: 10.1016/J.Jpainsymman.2018.12.312 |
0.535 |
|
| 2019 |
Kavalieratos D, Moreines L, Chen E, Dellon EP. Inviting Ourselves to the Party: Cystic Fibrosis as a Model for Implementing Palliative Care Practice, Research, and Policy in "New Diseases” (FR439) Journal of Pain and Symptom Management. 57: 417-418. DOI: 10.1016/J.Jpainsymman.2018.12.136 |
0.418 |
|
| 2019 |
Kavalieratos D, Moreines L, Hoydich Z, Ikejiani D, Yabes J, Dellon EP, Richless C, Arnold R, Pilewski J. Embedded Specialty Palliative Care Is Feasible, Acceptable, and Perceived to Be Effective in Cystic Fibrosis: Results of a Pilot Randomized Clinical Trial (TH371A) Journal of Pain and Symptom Management. 57: 396. DOI: 10.1016/J.Jpainsymman.2018.12.094 |
0.445 |
|
| 2018 |
Dellon EP, Helms SW, Hailey CE, Shay R, Carney SD, Schmidt HJ, Brown DE, Prieur MG. Exploring knowledge and perceptions of palliative care to inform integration of palliative care education into cystic fibrosis care. Pediatric Pulmonology. PMID 29862668 DOI: 10.1002/Ppul.24073 |
0.519 |
|
| 2018 |
Martiniano SL, Toprak D, Ong T, Zemanick ET, Daines CL, Muhlebach MS, Esther CR, Dellon EP. Highlights from the 2017 North American Cystic Fibrosis Conference. Pediatric Pulmonology. PMID 29660839 DOI: 10.1002/Ppul.24000 |
0.491 |
|
| 2018 |
Farber JG, Prieur MG, Roach C, Shay R, Walter M, Borowitz D, Dellon EP. Difficult conversations: Discussing prognosis with children with cystic fibrosis. Pediatric Pulmonology. PMID 29528566 DOI: 10.1002/Ppul.23975 |
0.44 |
|
| 2018 |
Hailey C, Tan J, Dellon EP, Park E. Parenting with Cystic Fibrosis: Balancing Roles as Parent and Patient with a Life-Limiting Illness (SA518D) Journal of Pain and Symptom Management. 55: 649. DOI: 10.1016/J.Jpainsymman.2017.12.195 |
0.325 |
|
| 2018 |
Jameison D, Prieur M, Dellon EP. Communicating Prognosis in Life-Limiting Illnesses: Development and Pilot Testing of Communication Guides for Pediatric Providers and Parents in Cystic Fibrosis (TH340C) Journal of Pain and Symptom Management. 55: 580. DOI: 10.1016/J.Jpainsymman.2017.12.043 |
0.333 |
|
| 2017 |
Dellon EP, Goggin J, Chen E, Sabadosa K, Hempstead SE, Faro A, Homa K. Defining palliative care in cystic fibrosis: A Delphi study. Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society. PMID 29097163 DOI: 10.1016/J.Jcf.2017.10.011 |
0.546 |
|
| 2017 |
Chen E, Homa K, Goggin J, Sabadosa KA, Hempstead S, Marshall BC, Faro A, Dellon EP. End-of-life practice patterns at U.S. adult cystic fibrosis care centers: A national retrospective chart review. Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society. PMID 28917611 DOI: 10.1016/J.Jcf.2017.08.010 |
0.551 |
|
| 2017 |
Dellon E, Goldfarb SB, Hayes D, Sawicki GS, Wolfe J, Boyer D. Pediatric lung transplantation and end of life care in cystic fibrosis: Barriers and successful strategies. Pediatric Pulmonology. PMID 28786560 DOI: 10.1002/Ppul.23748 |
0.438 |
|
| 2017 |
Zemanick ET, Daines CL, Dellon EP, Esther CR, Kinghorn B, Ong T, Muhlebach MS. Highlights from the 2016 North American Cystic Fibrosis Conference. Pediatric Pulmonology. PMID 28696526 DOI: 10.1002/Ppul.23707 |
0.477 |
|
| 2017 |
Helms SW, Christon LM, Dellon EP, Prinstein MJ. Patient and Provider Perspectives on Communication About Body Image With Adolescents and Young Adults With Cystic Fibrosis. Journal of Pediatric Psychology. PMID 28369522 DOI: 10.1093/Jpepsy/Jsx055 |
0.365 |
|
| 2017 |
Vander Schaaf EB, Dellon EP, Carr RA, deJong NA, Skinner AC, Steiner MJ. Perceptions of the medical home by parents of children with chronic illnesses. The American Journal of Managed Care. 23: e70-e74. PMID 28245657 |
0.381 |
|
| 2017 |
Hailey C, Prieur M, Helms S, Schmidt H, Carney S, Dellon E. Implementing Standardized Palliative Care Education for Children and Adults with Cystic Fibrosis (S732) Journal of Pain and Symptom Management. 53: 427. DOI: 10.1016/J.Jpainsymman.2016.12.242 |
0.455 |
|
| 2016 |
Zemanick ET, Ong T, Daines CL, Dellon EP, Muhlebach MS, Esther CR. Highlights from the 2015 North American Cystic Fibrosis Conference. Pediatric Pulmonology. PMID 27074261 DOI: 10.1002/Ppul.23441 |
0.333 |
|
| 2016 |
Saunders J, Prieur M, Walter M, Borowitz D, Dellon E. Difficult Conversations: Discussing Prognosis with Children with Cystic Fibrosis (FR481A) Journal of Pain and Symptom Management. 51: 379. DOI: 10.1016/J.Jpainsymman.2015.12.250 |
0.355 |
|
| 2015 |
Dellon EP, Chen E, Goggin J, Homa K, Marshall BC, Sabadosa KA, Cohen RI. Advance care planning in cystic fibrosis: Current practices, challenges, and opportunities. Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society. PMID 26362396 DOI: 10.1016/J.Jcf.2015.08.004 |
0.539 |
|
| 2015 |
Helms SW, Dellon EP, Prinstein MJ. Friendship quality and health-related outcomes among adolescents with cystic fibrosis. Journal of Pediatric Psychology. 40: 349-58. PMID 25096236 DOI: 10.1093/Jpepsy/Jsu063 |
0.341 |
|
| 2014 |
Goggin J, Cohen R, Dellon E, Sabadosa K, Homa K, Marshall B. Adults with Cystic Fibrosis at End of Life: A Nationwide Survey of Current Practices (S723) Journal of Pain and Symptom Management. 47: 478-479. DOI: 10.1016/J.Jpainsymman.2013.12.141 |
0.378 |
|
| 2012 |
Dellon EP, Sawicki GS, Shores MD, Wolfe J, Hanson LC. Physician practices for communicating with patients with cystic fibrosis about the use of noninvasive and invasive mechanical ventilation. Chest. 141: 1010-7. PMID 21998257 DOI: 10.1378/Chest.11-1323 |
0.44 |
|
| 2012 |
Varela AM, Deal AM, Hanson LC, Blatt J, Gold S, Dellon EP. Barriers to hospice for children as perceived by hospice organizations in North Carolina. The American Journal of Hospice & Palliative Care. 29: 171-6. PMID 21712308 DOI: 10.1177/1049909111412580 |
0.378 |
|
| 2011 |
Sanchez Varela AM, Dussel V, Barfield R, Bidegain M, Delima L, Dellon E. Perceived Resources and Barriers to Pediatric Palliative Care Among HealthCare Practitioners Attending the V Latin American Palliative Care Association (ALCP) Meeting (755) Journal of Pain and Symptom Management. 41: 306. DOI: 10.1016/J.Jpainsymman.2010.10.234 |
0.438 |
|
| 2011 |
Sanchez Varela AM, Deal A, Dellon E, Hanson L, Gold S, Blatt J. Current State of Hospice Care for Children in North Carolina (754) Journal of Pain and Symptom Management. 41: 305. DOI: 10.1016/J.Jpainsymman.2010.10.233 |
0.38 |
|
| 2010 |
Dellon EP, Shores MD, Nelson KI, Wolfe J, Noah TL, Hanson LC. Family caregiver perspectives on symptoms and treatments for patients dying from complications of cystic fibrosis. Journal of Pain and Symptom Management. 40: 829-37. PMID 20850267 DOI: 10.1016/J.Jpainsymman.2010.03.024 |
0.36 |
|
| 2010 |
Dellon EP, Shores MD, Nelson KI, Wolfe J, Noah TL, Hanson LC. Caregiver perspectives on discussions about the use of intensive treatments in cystic fibrosis. Journal of Pain and Symptom Management. 40: 821-8. PMID 20828981 DOI: 10.1016/J.Jpainsymman.2010.03.021 |
0.387 |
|
| 2009 |
Dellon EP, Shores MD, Nelson KI, Wolfe J, Noah TL, Hanson LC. Caregivers' perspectives on decision making about lung transplantation in cystic fibrosis. Progress in Transplantation (Aliso Viejo, Calif.). 19: 318-25. PMID 20050454 DOI: 10.7182/Prtr.19.4.81151027368G8347 |
0.345 |
|
| 2008 |
Dellon EP, Donaldson SH, Johnson R, Davis SD. Safety and tolerability of inhaled hypertonic saline in young children with cystic fibrosis. Pediatric Pulmonology. 43: 1100-6. PMID 18828160 DOI: 10.1002/Ppul.20909 |
0.339 |
|
| 2007 |
Dellon EP, Leigh MW, Yankaskas JR, Noah TL. Effects of lung transplantation on inpatient end of life care in cystic fibrosis. Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society. 6: 396-402. PMID 17481967 DOI: 10.1016/J.Jcf.2007.03.005 |
0.403 |
|
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